BAKE SALE for Lily WHEN: Tomorrow, Friday, September 7th WHERE: Our Lady of Fatima School TIME: 12:00 PM & 3:00 PM The loving Parents of Fatima Board is hosting a Bake Sale for Lily tomorrow. Students can make a donation in exchange for yummy homemade treats during lunch recess and after school. If you’re not […]
09-03-2012
Back in ICU
Yesterday Lily was moved to ICU. She had been having episodes of vomiting, fever, increased heart rate and blood pressure and increased muscle tone/spasticity since last Monday- seemed to be linked to a bladder infection. And since it was not getting any better and was preventing her from therapy, her cardiologist and GI doc felt […]
08-27-2012
A Day of Mixed Emotions
Today was a day of mixed emotions. Charlotte started first grade today and Lily wasn’t with her friends starting fourth grade. Taking Charlotte to school was extremely tough, I’ve been anticipating this day for weeks. I kept it together for Charlotte; she was so excited to return to school, so excited to have Mrs. Levinson […]
08-26-2012
Ups and Downs
This has been a week of adjustments, for all of us. New surroundings, new doctors, new nurses, new schedules, etc. Lily has had her ups and downs. First it was weening her off some medications because they felt she was too sedated, but maybe that was too aggressive because she went to the other extreme. […]
08-24-2012
Millers West
Lily has had a busy week at her new home at Miller West. I had the opportunity to spend some time with everyone yesterday and get a feel for what the new chapter in Lils recovery is going to look like. After a call for visitors you all responded and that is exactly what we […]
08-22-2012
Adjusting
We are adjusting to Millers West, our new home with Lily . . . for now. We are trying to make her room as homey as possible. It’s very basic and a bit dated, but we have a big window which is nice. We explored outside today to the atrium garden; a peaceful place where […]
08-21-2012
We Need You
If you are up for making the drive please feel free to come visit Lily. We feel so far from home making this part of our journey very difficult. We understand that it can be an adjustment for all of us I just wish my “homesick” feeling would go away. Maybe some new, colorful artwork […]
08-20-2012
Thanking the Firemen at Station 59
We all know there are Angels surrounding Lily especially since only 1 in 10,000 survive an event that she had 6 weeks ago yesterday. Angels that we can’t see and then there are Angels that we can see like Bob, Brian, Mike and Chris; crew T59C of San Clemente Fire Station 59. Last Thursday morning […]
08-20-2012
Moving Day for Lil
Leslie is riding with the transport team from CHOC with Lily to her new home away from home in Long Beach tonight! Sometime late this evening Lily will become the newest rehab resident at Miller Childrens Hospital. I know this is a BIG day for Les and Jim too, they must feel elated and anxious […]
08-17-2012
V-fib
A big thank you to everyone who sounded with feedback regarding rehabilitation centers the response was overwhelming and very helpful! We visited Miller Hospital in Long Beach yesterday and were very impressed with their program and the head physiatrist. The good news is that Lily has been accepted into their program and we are thrilled […]
