Lily the Scientist

School started 3 weeks ago. Lily would be in 5th grade while her sister begins the 2nd grade. Although Lily technically isn’t enrolled at her school we are continuing to be part of her class. She lights up whenever she is around her school friends, its great motivation for her. In 5th grade they have science l, […]


Brand New Day

Thank you everyone for your thoughtful posts; I didn’t mean to sound so discouraged in mine. In fact, it’s quite the opposite. Lily continues to progress. She has her ups and downs with various health issues but overall she is doing well. And she is getting better. And she continues to amaze us. But honestly […]


Therapy, therapy and more therapy

Lily continues to work very hard in her therapies. She works 6 days a week, 3-4 hours a day. We met with a specialist this week and learned more daily exercises to do with Lily. We have so many activities to do with her that there aren’t enough hours in the day. So we have […]


So Much To Be Thankful For

Today we give thanks for all of our blessings. This year we have experienced such heartache and grief yet we have been so blessed at the same time. We are grateful that Lily is alive, that we are together again at home, that we are healthy, that we have a roof over our heads and […]


Working Hard

We came home 4 weeks today. It has been a big adjustment for all of us but we are very happy to be together again at home. We have been feeling our way through the “system” of insurance, nursing care, home health supplies, etc. Lily has been busy Monday through Fridays with her therapies; most […]


A Day of Mixed Emotions

Today was a day of mixed emotions. Charlotte started first grade today and Lily wasn’t with her friends starting fourth grade. Taking Charlotte to school was extremely tough, I’ve been anticipating this day for weeks. I kept it together for Charlotte; she was so excited to return to school, so excited to have Mrs. Levinson […]