Lily passed the g-tube plastic disk yesterday….whew! Glad we can check that off the list. Lily seemed to be more comfortable afterwards and had a restful day yesterday. She started off having a peaceful day today but she still is having some kind of discomfort. It’s anyone’s guess as to what is bothering her . […]
09-20-2012
Another hurdle
Lily remains in ICU at Millers. We originally thought we’d be here a few days but it will be 3 weeks on Sunday. Lily has had a few more hurdles along the way. The jtube she had placed last Friday seems to be going pretty well. However she did catch a cold and has had […]
09-15-2012
Moving in the Right Direction
Yesterday, doctors were able to replace Lily’s g-tube with a j-tube. Now her feeds will go into her intestine; bypassing her stomach. It will also bypass her pancreas which has been irritated over the last week (doctors still are not sure why). And after this morning’s blood tests we found that her enzyme levels are […]
07-28-2012
From nasal to Gtube
We apologize for the lapse in updates…we have been taking things one day at a time. Lily is currently resting. On Thursday, she had her feeding tube removed from her nose and a new gtube placed in her stomach– a good thing since it was causing her discomfort in her nose and throat and is […]
07-20-2012
A Test of Faith
The last 48 hours have been some of our most challenging yet. It has been a series of ups and downs but one thing is for sure and that is that nothing is for sure. On Saturday Jim and I made our first trip out of the CHOC hospital block and went home for a […]
