Keeping the Momentum

Monday was an emotional day. It was a day of raw emotions yet it was also a day of happy ones, too. It’s hard to believe a year has passed since Lily has talked, walked, ate a meal, and just been a typical carefree-kid. We decided to make July 8th not only a day to reflect […]


Tribute to YOU!

This post is dedicated to all of you. I have been meaning to do this for several months . . .we want to thank each and every one of you for the soft and fury friends, the handwritten notes of well wishes, the beautiful drawings, the sweet poems, the fine works of art, the tokens […]


Catching Up

Just wanted to post an update for you all–I know I am not very consistent. I apologize, I just want to have new news when I post so you continue to be interested in Lily’s journey. My biggest fear is that Lily is “out of sight–out of mind” and the prayers will fade. She continues […]


Bake Sale

BAKE SALE for Lily WHEN: Tomorrow, Friday, September 7th WHERE: Our Lady of Fatima School TIME: 12:00 PM & 3:00 PM The loving Parents of Fatima Board is hosting a Bake Sale for Lily tomorrow. Students can make a donation in exchange for yummy homemade treats during lunch recess and after school. If you’re not […]


Thanking the Firemen at Station 59

We all know there are Angels surrounding Lily especially since only 1 in 10,000 survive an event that she had 6 weeks ago yesterday. Angels that we can’t see and then there are Angels that we can see like Bob, Brian, Mike and Chris; crew T59C of San Clemente Fire Station 59. Last Thursday morning […]


Moving Day for Lil

Leslie is riding with the transport team from CHOC with Lily to her new home away from home in Long Beach tonight! Sometime late this evening Lily will become the newest rehab resident at Miller Childrens Hospital. I know this is a BIG day for Les and Jim too, they must feel elated and anxious […]


Preparing for ICD Surgery

Lily continues the daily routine of rehab and rest. We walk a fine line of challenging her in rehab without causing her heart any distress. Although she is on medications to control her arrhythmia she continues to have sporadic breakthroughs. A few days ago She went for a stroll outside for the first time. She […]


Lemonade for Lily

I received this email from a dear friend, Tammie Flanagan, this morning: “We are doing a lemonade stand tomorrow (Wednesday) for Lily…it was my son, Parker’s idea. Is there any way you could maybe let people know? We are doing it on the sidewalk in Talega… Starting around 2pm” Thank you Tammie and to all […]