Homecoming Delayed

Our discharge that was planned for today is delayed. The past couple days Lily has been very uncomfortable, not sleeping and crying in pain at times. And this pain has brought her spasticity back. 🙁 Now we are trying to figure out what’s wrong. On her last 2 X-rays there has been a “foreign object”/a […]


Counting Down Until We Go Home

Lily is doing very well thanks to her new Baclofen pump. She seems very comfortable with very minimal spasticity. We are happy we made the tough to decision to have it implanted. We are still anticipating heading home by Tuesday. But as always we are just going with the flow because things can change at […]


Resting After Surgery

Thank you all for your prayers and well wishes for Lily and her Baclofen pump surgery this morning. Everything went as expected with no hiccups. She is still asleep from the surgery and is resting peacefully in Millers pediatric ICU. We will keep you posted on her recovery. God Bless, Leslie


Dealing with spasticity

First, thank you to everyone that participated in yesterday’s Bake Sale. I heard it was a huge success! I hope someone took pictures, I heard the homemade treats were incredible. I am so touched by everyone’s kindness and concern for Lily. Thank you from the bottom of my heart. Lily is still in the ICU […]