Tons of Updates

Season Greetings everyone, hard to believe we are deep in the holiday season and I haven’t posted in over 2 months. Life is moving at a different pace these days. It has been very busy with lots of ups and downs. I’m happy to report that Lily continues to progress every day. She seems to be […]


Happy 10th Birthday Lily!

Ten years ago today on May 6th God brought Angel Lily into this world at 11:31 AM on a Tuesday. Lily is linked to chain of miracles from her conception, her birth by emergency c-section, surviving her heart attack to her continued progress in her recovery. This world became a better place when she entered […]


Back in ICU

Yesterday Lily was moved to ICU. She had been having episodes of vomiting, fever, increased heart rate and blood pressure and increased muscle tone/spasticity since last Monday- seemed to be linked to a bladder infection. And since it was not getting any better and was preventing her from therapy, her cardiologist and GI doc felt […]