Counting Down Until We Go Home

Lily is doing very well thanks to her new Baclofen pump. She seems very comfortable with very minimal spasticity. We are happy we made the tough to decision to have it implanted. We are still anticipating heading home by Tuesday. But as always we are just going with the flow because things can change at a moments notice. We are trying to get things in place at home and line up therapies as well. It will be a transition and there will be little time for rest as keeping Lily busy with exercises will be time consuming. But we are hopeful that bringing her home is the best therapy for her.

Thank you to everyone for your support and prayers.


Millers Children Hospital

Inside Lily’s room at Millers

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