Keeping the Momentum

Monday was an emotional day. It was a day of raw emotions yet it was also a day of happy ones, too. It’s hard to believe a year has passed since Lily has talked, walked, ate a meal, and just been a typical carefree-kid. We decided to make July 8th not only a day to reflect […]


Happy 10th Birthday Lily!

Ten years ago today on May 6th God brought Angel Lily into this world at 11:31 AM on a Tuesday. Lily is linked to chain of miracles from her conception, her birth by emergency c-section, surviving her heart attack to her continued progress in her recovery. This world became a better place when she entered […]


Tribute to YOU!

This post is dedicated to all of you. I have been meaning to do this for several months . . .we want to thank each and every one of you for the soft and fury friends, the handwritten notes of well wishes, the beautiful drawings, the sweet poems, the fine works of art, the tokens […]


Brand New Day

Thank you everyone for your thoughtful posts; I didn’t mean to sound so discouraged in mine. In fact, it’s quite the opposite. Lily continues to progress. She has her ups and downs with various health issues but overall she is doing well. And she is getting better. And she continues to amaze us. But honestly […]


Another Anniversary

It’s been nine months…..today. Tough day, very tough.


Back in the Water

We took Lily in the jacuzzi this weekend for the first time since her injury. We’ve been talking about doing so for a while, now I wish we hadn’t waited so long. We had some friends over and all the other little girls were in the jacuzzi so I asked Lily if she wanted to […]


March Already?

It’s hard to believe it’s March already and that we have lived nearly all four seasons since Lily’s injury. We are in our 9th month post injury (not that I’m counting) and she continues to progress. Mostly her strength in her neck and torso giving her the ability to hold her head for longer periods. […]


Catching Up

Just wanted to post an update for you all–I know I am not very consistent. I apologize, I just want to have new news when I post so you continue to be interested in Lily’s journey. My biggest fear is that Lily is “out of sight–out of mind” and the prayers will fade. She continues […]


Back In The Saddle

Last week we went to the Shea Therapeutic Riding Center for the first time. Lily had an evaluation and they got her on a horse! That was an exciting surprise for everyone. Its incredible how much energy it takes for Lily to ride and for us who are holding and ensuring her safety. Lily seemed […]


Therapy, therapy and more therapy

Lily continues to work very hard in her therapies. She works 6 days a week, 3-4 hours a day. We met with a specialist this week and learned more daily exercises to do with Lily. We have so many activities to do with her that there aren’t enough hours in the day. So we have […]