Lily has been home a week and boy does it feel good. We are so thrilled to be together again under one roof, especially little sister Charlotte. Although it can be a bit overwhelming for Lily seems to be happier home–her blood pressure is overall lower than it was at the hospital. In the past […]
Lily had a CT scan and it shows no appendicitis. Everything is okay and we are cleared to go home today. So happy to finally go home and be together as a family under the same roof. It has been nearly 16 weeks since Lily has been home. We feel ready to go home and […]
It doesn’t look like we are heading home tomorrow. Whew! Even if we were to be discharged we would fight it because we don’t have any equipment, medications, a hospital bed or anything set up at home. It’s all in the works but nothing is at the house. We have stuff to pack up, furniture […]
We just found out that we may be going home Friday or maybe as early as tomorrow. We knew we were on our way out next week, but tomorrow..??? I honestly don’t know how that is going to work. We have NOTHING at home for Lily’s care. I know they are feverishly working on getting […]
On Monday we moved out of ICU. Although we moved back to Miller West Rehab facility Lily is technically not in Rehab. Lily remains under a pediatricians care and still closely followed by her cardiologists and GI doctors. Our insurance company is not clearing her to return to Rehab right now. However she is still […]
We are adjusting to Millers West, our new home with Lily . . . for now. We are trying to make her room as homey as possible. It’s very basic and a bit dated, but we have a big window which is nice. We explored outside today to the atrium garden; a peaceful place where […]
